Maintaining a Healthy Diet with Food Allergies: Cheryl Harris, MPH, RD

cherylpic littleWhen you have food allergies, it’s often a challenge to find foods that are safe, tasty, and nutritious all at the same time. Worrying about hidden allergens, reading labels multiple times, and the caution you have to take with every meal can make it difficult to find a balanced diet. As a dietician, Cheryl Harris, MPH, RD aims to help people, especially those with food allergies or celiac disease, find ways to live and eat well. She will be speaking on the topic at FARE’s Food Allergy Conference in Arlington, VA on May 18.

We asked Cheryl to tell us a bit about her session and her experience at our conferences in the past.

You’ve been to a conference before – what was your favorite part?

FARE always does a great job. I think we’re so very lucky to have Dr. Wood in our backyard, and it’s so gracious of him to present every year. I mean, how great is it to have a Q&A with one of the go-to allergy experts in the country? It’s quite a privilege to get the latest and greatest in the allergy world directly from the source. I’m also really looking forward to the session on managing emotional issues with food allergies because that is so critical, and it’s an area that often gets too little attention.

What will you be covering in your session?

We’ll be covering a range of topics, from nutritional potholes and how to avoid them to tips and tricks that help make life more wonderful. Obviously the first step is strictly avoiding the allergen, but the second step is supporting yourself or your child to ensure a balanced, nutritious, and varied diet.

What challenges do people with food allergies typically face from a nutritional standpoint?

Oh, that’s the hardest one to sum up briefly, because it totally depends on what the problematic food and the child’s age. Every allergy has its own nutritional impact, and of course, the more severe the allergy, the harder it is, especially for people who can only use foods from a dedicated allergen-free facility. Not surprisingly, research studies have shown that children with multiple allergies and/or milk protein allergies are much more likely to be underweight or malnourished.

Food allergies inevitably change the whole family’s relationship with food. Many toddlers are picky in the best of times. Not surprisingly, young children who have learned that food can lead to a trip to the ER are often much more reluctant to try new foods, and who can blame them? It adds an extra layer of hurdles for parents.

There’s still time to register for one of our upcoming conferences, being held in Arlington, VA (May 18); and Anaheim, CA (June 1). Register today on our website: www.foodallergy.org/conferences

Read more about Cheryl on her website www.harriswholehealth.com

FARE Food Allergy Fundraising Champion: Mike Monroe

Think about the last time you went to the gym or out for a run – how long did you exercise? Thirty minutes? One hour? Now picture yourself sitting down at a rowing machine and not stopping for 24 hours straight. That is what Mike Monroe – food allergy dad, extreme athlete and former Marine – will attempt to accomplish on May 17. Mike hopes to break the indoor rowing machine record for his age/weight, which will require him to row 276,917 meters, with the goal of raising $50,000 to benefit FARE.

We asked Mike a few questions about his event to kick off a new series of blog posts that will highlight some of our FARE Food Allergy Fundraising Champions. Over the years, our supporters have organized some incredible fundraisers in support of food allergy education, advocacy, awareness and research. We’ll be posting their stories periodically to highlight their contributions and show innovative ways that you can get involved with raising funds for and awareness about food allergies.

What is your connection to food allergies?
My 8-year-old son, Miles, has severe food allergies. He is allergic to wheat, milk, eggs and nuts. He is an amazing little boy and it breaks my heart when he gets upset about being different.

Tell us about your fundraiser. How did you think of the idea?
I am going to row on an indoor rowing machine for 24 hours. I want to try to break the known record for my age/weight class. I thought of the idea because I wanted to raise money to help with clinical trials for kids with food allergies. I wanted to do something that was just crazy enough that it would get people’s attention and make them want to donate. I also wanted to do something that was new to me so I could challenge myself.

How can others get involved?
There are a few ways:

  1. You can go to my website and make a donation. I am trying to raise $50,000 in donations and every little bit helps.   
  2. You can row alongside me!  On the website, you can sign up to “Participate.”  For a $50 donation you can row for 30 minutes to show your support. 
  3. You can simply spread the word via friends and family.  Share the web link, post to Facebook and Twitter, etc. 
  4. Visit the Sport&Health Club in Old Town Alexandria between noon on Friday, May 17 and noon on Saturday, May 18 and cheer me on a bit. 

Why did you decide to get involved with FARE in particular?

My wife and I attended a fundraiser last year that was hosted by the Food Allergy & Anaphylaxis Network (FAAN). I met Maria Acebal (former FAAN CEO) and Dr. Hemant Sharma, who is now Miles’ allergist. FARE has been amazing in helping me put this together.

What’s been the best part about running this event/fundraiser?
I am fueled to reach my fundraising goal by my son and the other kids out there who suffer from food allergies. We need to figure this out and hopefully my efforts will help.

We’d like to thank Mike for his generosity and invite you to visit his FARE webpage for more information. If you would like to take on a physical challenge (such as a marathon or 5K) on behalf of FARE or set up a campaign asking friends to give to FARE in lieu of special occasion gifts, please contact your regional office for more information.

Food Allergy Awareness Week 2013

fawwthumbFood Allergy Awareness Week (FAAW) starts in just two days! Next week, May 12-18, provides the perfect opportunity to educate those in your community about the severity of this potentially life-threatening medical condition. Here are a few events and ways you can get involved!

  1. Educate: Hang up a Food Allergy Awareness Week Poster at your school, library, or workplace. Make a presentation to educate others about food allergies, or share some facts about food allergies on social media.
  2. Participate: We’ll have quite a few opportunities for you to participate in events and help raise awareness online. Make sure you like our Facebook page and follow us on Twitter so you can take part!
  3. Show your support: Sign up a team for a FARE Walk for Food Allergy in your area, purchase a Food Allergy Awareness T-shirt, or become a member of FARE to show your support!

We look forward to celebrating FAAW with you, and be sure to stay tuned for a big announcement this week! For more resources and a full calendar of events, visit our website: http://www.foodallergy.org/food-allergy-awareness-week/activities

What are you doing for FAAW? We’d love to see what you’re up to! Post pictures on our Facebook page, use the hashtag #FoodAllergyWk on Twitter, leave a comment here, or email Anna Luke at aluke@foodallergy.org.

FARE Supports Local Groups Via Community Outreach Grants

FARE is happy to announce the recipients of our 2013 Community Outreach Grants (COG). The COG program seeks to raise awareness and improve education about food allergies through grassroots programs across the United States. This year, a total of 13 grants were given out to programs in 10 states. A summary of the approved projects is below.

Grant Title and Location

Staying Safe at School Assembly
Lansing, MI

Austin Area School Staff Education & Support
Austin, TX

Food Allergies Impact on Mental Health
Charlotte, NC

Boise, ID Support Group Outreach
Boise, ID

Utah Food Allergy Conference
Salt Lake City, UT

“Road to No Reaction” Concert
Ridgewood, NJ

Food Allergy Blogger Conference
Las Vegas, NV

San Diego Community Outreach and Education
San Diego, CA

School Allergy Awareness Assemblies
San Jose, CA

Food Allergy Support & Resources in Western NY
Buffalo, NY

Capital District Food Allergy Educational Conference
Albany, NY

Food Allergy Kids of Atlanta School Advocacy Program
Atlanta, GA

Food Allergy Book Donations for Public Schools
Triangle, NC

We’d like to extend our congratulations and appreciation to all of the local leaders who are spearheading these terrific projects, which will help raise awareness of food allergies as a serious public health issue.

“Be Your Own Advocate”: Teens at FARE’s Annual Food Allergy Conferences

Carlo Steinman Profile PictureCollege sophomore Carlo Steinman is a member of FARE’s Teen Advisory Group (TAG) and will be attending FARE’s Food Allergy Conference this weekend in Oak Brook, IL. Each of our three conferences this year will feature a special teen program that will run alongside the general conference programs from 9:15 a.m. to 3:30 p.m. Programming is being developed with input from local members of FARE’s TAG and will feature peer-driven experiential sessions that will be both fun and educational.

We asked Carlo to tell us a bit about himself and his experience at our conferences in the past.

Tell us about your food allergies and why you’re involved with FARE.

My name is Carlo Steinman, and I am allergic to milk, wheat, eggs, peanuts, tree nuts, soy, sesame, fish, shellfish, most fruits and some vegetables. I work with FARE to help food-allergic young people learn that we are not alone and that there are others like us out there who are going through similar things.

You’ve been to our Food Allergy Conferences before – what was your favorite part?

My favorite part of previous conferences has been the teen lunch session because it provides an empowering environment for socializing with peers while simultaneously learning to better manage my allergies.

What are you most excited about for this year’s conference?

I’m excited to share my experiences growing up and living away from my parents to help others who have not yet gotten to that point of their lives feel more confident about the future.

If you could give one piece of advice to other teens with food allergies, what would it be?

My one piece of advice to other teens with food allergies is to be your own advocate. It’s not easy to always stand up for yourself, but if you do, your food allergies will not stand in the way of leading a happy and fulfilling life.

There’s still time to register for one of our upcoming conferences, being held in Oak Brook, IL (May 4); Arlington, VA (May 18); and Anaheim, CA (June 1). Register today on our website: www.foodallergy.org/conferences

Please note that pre-registration for the Oak Brook conference closes at 5pm EST on April 30, 2013. On-site registration will be available starting at 8 AM on Saturday, May 4 in the Hyatt’s 2nd Floor Foyer. Space is still available and we will not sell out.

Food Allergy-Friendly Summer Camps

312451_10150318964367416_1330614613_nWith the school year winding down, kids across the country are counting down the days until summer. For many kids, summer will include attending a camp.

Ensuring a safe (and fun!) camp experience for children with food allergies requires camp staff, physicians, parents, and campers to work together. Our website contains many helpful tips on how to choose a camp and prepare your child. Additionally, our Resources for Camps page can be a great tool to send to camp staff prior to your child’s arrival.

We’re also introducing a new resource – a list of camps that cater to children with food allergies. There are many camps across the country that are either designed specifically for children with food allergies or welcome campers with food allergies. These camps remove certain allergens from their sites, have instituted procedures for anaphylactic emergencies, and have medical personnel on location who are trained in administering epinephrine.

View the food allergy camps list on our website>

Please note that FARE does not certify, review, or accredit camps. Parents should complete a thorough and independent review of a camp’s practices and procedures to ensure their safety and capacity to accommodate a child with food allergies.

The camp list is a work in progress, and we look forward to hearing from members of the community about camps that have been great partners in providing your child a safe and inclusive camp experience.

Do you know of a camp that’s great for kids with food allergies? Tell us about it in the comments.

DISCLAIMER: Please note that FARE does not endorse, promote, or benefit from listing these camps.This information is provided only as a resource to the food allergy community. FARE has not independently confirmed the completeness or accuracy of the information provided herein. FARE does not assume any responsibility for, or warrant, the representations or offers made within this directory. Nor does FARE assume responsibility for the actions of camps or camp staff members.

FARE Kids Who Care: Haleigh Loso

Haleighscan_headWe often hear about terrific kids across the country who go above and beyond in their efforts to support food allergy education, advocacy, awareness and research. Whether they’re fundraising, advocating for legislation, or helpingraise awareness in their communities, these kids are making a big difference for the food allergy community. Today, we are launching our new “FARE Kids Who Care” blog series to share with you their inspiring stories.

Haleigh Loso is one of 10 students at Woodland Elementary in Portage, Michigan, who has been diagnosed with life-threatening food allergies. While the 8-year-old has outgrown her allergies to corn, peas and beans, she is still allergic to peanuts, tree nuts, eggs and shellfish.

“I pray every day that someone will find a cure for me and my friends,” Haleigh said.

Along with the three sets of epinephrine auto-injectors and antihistamines she carries, her classmates and the school staff have been critical to keeping her safe and helping her feel supported when she comes to school each day.

At the beginning of this school year, Haleigh and her mom spearheaded a fundraiser for FARE at her school. They pitted classes against each other, seeing which class could bring in the most money to win the school-wide “Change Wars.” The three classes to raise the most money were rewarded by seeing their teachers come to school in a wig for a day.

Not only did Haleigh lead her school to raise more than $1,600, but she helped raise awareness about food allergies by sending home information to each family, providing allergy-friendly snacks to the winning classes, and equipping each classroom in the school with books about food allergies.

Below is a picture of the teachers whose classes won the Change Wars. According to Haleigh: “They were great sports and wore their wigs the entire school day! My friends LOVED it!”

Haleighscan_teachers

A big thank you to our FARE Kid Who Cares Haleigh and all of the Woodland Elementary community for participating in this fundraiser! The innovative ideas and hard work of kids like Haleigh help us continue our work of ensuring the safety and inclusion of those with food allergies, while also seeking the cure that Haleigh hopes for.

Do you have a great idea for a fundraiser? Get in touch with your regional office: www.foodallergy.org/regional-offices

Read more coverage on MLive.com >