Food Allergy Research

Interested in Providing the Patient Perspective in Research?

FARE recently received the Eugene Washington Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI).

FARE’s two-year project, “Empowering Patient Partners and Key Stakeholders to Develop a Patient-Centric Food Allergy Research Program,” seeks to address an unmet need in the research field by forming a partnership of patients empowered to work with other key stakeholders to create a patient-centric food allergy research program informed by real world experiences.

The cornerstone of this project is FARE’s new Outcomes Research Advisory Board, which will include four regional sub-groups (East, South, Midwest and West).

Do you know someone interested in joining FARE’s new Outcomes Research Advisory Board?

  • Members will provide their unique perspectives on research topics
  • Members will meet quarterly, with at least one in-person meeting annually
  • The advisory board will fill currently unmet needs at a critical time in food allergy research in at least two areas: patient and clinical research and clinical trials research.

All applications must be received no later than June 13, 2016 12 p.m. ET.  Applicants must be at least 18 years of age.

Applicants will be notified of final decisions on or about July 19 prior to the first virtual call July 20.

For more information and a link to the application form, please visit www.foodallergy.org/research/outcomes-research

AcknowledgementThis program was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (3017-FARE).

 

One thought on “Interested in Providing the Patient Perspective in Research?

  1. Please help regarding prescriptions and OTC medical products with inactive ingredients that include food ingredients. My insurance selects the cheapest product. My pharmacy has limited medication products. I am allergic to milk, corn, soy, wheat, oats and coconut among others. My pharmacist gives me the NDC numbers for his available products then I can look them up to choose. I am limited on choices so I have to chose something that I am allergic to if I need the medication. OTC products frequently include milk, corn, soy, coconut, oats. Do you have any influence with pharmaceuticals? One of my recent prescriptions had shellac, polypropylene glycol in it and sodium laurel sulfate in it. WHY? My popular thyroid medication was not allowed and I have to pay for it. I wish the insurance companies and pharmaceuticals would put patient care first and profit second. My aunt told me “If wishes were horses poor men would ride.” Color me allergic and disgusted.

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